There's still time - Your voice is needed!

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Do you or your child have eczema? Have you gone through TSW?  Please take our Survey!!

 

TSW Community – YOUR VOICE IS NEEDED to help inform medical bodies about how current eczema treatments are working or not working for patients.

ITSAN and Allergy & Asthma Network have developed a survey that will capture how treatments and medications are affecting patients, including the exposure to and cumulative effects of steroids, topical or otherwise.

Our hope is that the data collected in this international survey will result in the re-evaluation of steroid medications, product label changes – including appropriate usage guidelines and warnings - and a change to the way doctors understand and treat eczema and other chronic skin conditions.


How long have you suffered from the effects of overexposure to steroids?  My son did for 6 years -- that comes to 3,153,600 minutes. I will definitely be taking 15 of those minutes to document our experience and change the tide of TSW, will you?  As a bonus, upon completing the survey, 50 people will be randomly chosen to receive a $50 gift card.  

Please take action today (the survey will only be open through the end of this month and your identity will be kept anonymous) and share with every TSW/Eczema Warrior you know to join us in our efforts to end the suffering.  Together our voices are powerful!!!


Survey tips - If you are a care-giver responding on behalf of your child, please enter your age when beginning the survey, as respondents need to be 18 yrs or older.  You will have an opportunity to enter your's child's age afterward.  Please have any medications handy to make it easy to input what they are and take your time reading through the questions as there is no back button.  You will be asked questions about the beginning of eczema, eczema at its worst (not TSW), if you went through TSW and what the severity was, and lastly, how your skin is now.

Jolene and her son, Max, raising their voices!

Thank you! 

Jolene MacDonald
ITSAN, Secretary
jmacdonald@itsan.org

                                                          



 

Have you been helped by ITSAN?  Please consider making a donation so that we can continue our work in raising global awareness and supporting those suffering from TSWS. ITSAN is funded solely by contributions from people like you. Your gift could make all the difference in someone's life!
Click here to make a donation: https://itsan.org/donate/

 

Please find support for your Topical Steroid Withdrawal Syndrome in the ITSAN public forum or Facebook TSW support group. ITSAN does not medically advise and only permits sharing of personal experiences. Anything advised or suggested by support group members is not necessarily endorsed by ITSAN.

 If you ever shop on Amazon.com, please take a minute to select ITSAN as your favorite charity in the Amazon Smile program. ITSAN will receive 0.5% of every purchase you make! On your first visit to AmazonSmile, you simply need to select International Topical Steroid Awareness Network as your designated charity to allow ITSAN to receive donations from your purchases. Once you do that, be sure to choose AmazonSmile.com for future visits. Amazon will remember your selection, and then every eligible purchase you make will result in a donation. Click on any Amazon Smile in this box to get started today! ITSAN appreciates your support!


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