Posts from ITSAN for 07/01/2021

Itsan Newsletter Excerpts: ITSAN 2021 "Spark" Virtual Patient Conference Agenda ITSAN 2021 "Spark" Virtual Patient Conference Agenda May 15, 2021 11am – 3:30pm Eastern (US) Register here. Hope to see you there! Time Topic 11:00 – 11:15 Welcome to Spark 11:15 – 11:30 Introductions – ITSAN board 11:30 – 11:50 Dr. Olivia Friedman – Eastern Medicine and TSW 11:50 – 12:00 Q&A with Dr. Olivia Friedman 12:00 – 12:30 TSW Success Stories Panel – from our ITSAN community 12:30 – 12:50 Dr. Belinda Sheary – TSW 101 and Western Medicine 12:50 – 1:10 Break 1:10 – 1:40 Advocacy – with Jodie Ohr and Kelly Barta 1:40 – 2:00 Understanding the Mental Health Aspect of TSW – Professor Angela Tiru 2:00 – 2:10 Q&A with Angela Tiru 2:10 – 2:20 Guided Mindfulness Meditation 2:20 – 2:50 Breakout Session #1 (3 Options: Kids' group, Men's group, Women's group) 2:50 – 3:20 Breakout Session #2 (3 Options: Caregivers for Kids, Caregivers for Adults, All adults in TSW) 3:20 – 3:30 Closing remarks Read on » First Quarter 2021 Newsletter First Quarter 2021 Newsletter Welcome to ITSAN's First Quarter 2021 Newsletter.  Our community has grown significantly over the last few months; we count over 9k currently in ITSAN's Private Facebook Support Group, over 3.7k followers on Instagram and have heard from TSW sufferers representing over 50 countries. ITSAN's mission is to raise awareness of Topical Steroid Withdrawal Syndrome and to support affected individuals, caregivers and healthcare providers. Recent achievements in TSWS recognition and Thanks to: The British Association of Dermatologists and the National Eczema Society (UK) for highlighting critical issues about Topical Steroid Withdrawal Syndrome in a joint position statement.  Read more here. The National Eczema Association for their informative article for individuals with eczema and their caregivers about Topical Steroid Withdrawal Syndrome — written in collaboration with top doctors, ITSAN and the TSW community.  Read the article here. Also, check out their new "TSW hub" with new information on TSW updated monthly. Joana Ceddia, a popular YouTuber who shared her experience going through TSWS and has received over 2.6 million views! View the video here.  Dr. Heba Khaled and translators who have helped make the comprehensive video, "A TSW Overview," accessible in Spanish and Korean. Save the Date – ITSAN Spark Conference ITSAN will host a virtual patient conference on Saturday, May 15, 2021.  Please join us for a day of support and TSW Syndrome education. Success stories and tips from medical providers for supporting physical and metal health during TSW Syndrome will be featured. More information coming soon! Industry Collaboration  & Steroid Stewardship ITSAN was one of five patient advocacy groups to attend the first Patient-Focused Drug Development meeting with the FDA about eczema treatments in 2019.  The report from this meeting called More Than Skin Deep, led to an alignment of steroid stewardship missions with Allergy and Asthma Network (AAN). A survey was developed by ITSAN President Kathy Tullos and AAN's State Advocacy Project Manager, Kelly Barta (currently an ITSAN board member as well) to improve research & treatment for skin issues, including safer steroid prescribing guidelines, and to inform about cumulative steroid load experienced by people in the eczema community. Topical Steroid Withdrawal Syndrome in the News & Community Top Left: It takes courage every time a TSW warrior or caregiver speaks about their trauma. No one should know Topical Steroid Withdrawal Syndrome and no loved one should witness it. Thank you Jessica for sharing your story.  Watch the 2 minute broadcast here. Top Middle: ITSAN is working to petition for labeling changes on the drug insert for topical corticosteroids, and to connect patients with doctors who understand how to diagnose, treat, and ultimately prevent this debilitating disease. With safer topical corticosteroid labeling, potential side effects of overexposure to steroids will become well defined and ultimately prevented by medical professionals. Learn more. Top Right: Briana Banos, the creator of Preventable: Protecting Our Largest Organ, recently shared a series of interviews with the stars of Preventable in a series called "Where Are They Now?" ITSAN President Kathy Tullos and her husband Jason Tullos were among those interviewed and discussed their son's recovery from TSWS. Preventable's two year anniversary was March 22.  Celebrate by visiting the Preventable YouTube channel and sharing with others.   Bottom left: The voices of TSW warriors and caregivers are at the forefront of raising awareness of Topical Steroid Withdrawal Syndrome.  ITSAN features warrior highlights including Melanie who is 7 years TSW, and shared her wisdom and strength in this Daily Mail article.  Bottom middle: ITSAN maintains a list of TSWS supportive doctors recommended by members.  If you are looking for a place to start, check the list in the Files section of the Facebook group: ITSAN Topical Steroid Withdrawal Syndrome Support Group – Private Group  Bottom right: @tsw_witnesses highlights pictures and interviews with TSW warriors from around the world to raise awareness about Topical Steroid Withdrawal Syndrome.  In February @tsw_witnesses reached 100 voices from the TSW community!  Caregiver Support:  ITSAN recognizes the need for mental health support for caregivers and warriors.  See some recent tips below.  Caregivers, find support here. Be gentle on yourself. Every day your love, your strength and your instincts champion your child's recovery. Returning to health and balance comes with continuing to identify what your child needs, including supportive medical providers, understanding school providers, family and friends who rise to the opportunity to learn about Topical Steroid Withdrawal Syndrome and to stand with you. Believe in your child's potential to heal and believe in yourself. Take care of their parent, their caregiver, their hero. Self forgiveness supports physical and emotional healing for the entire family. Read more.  Imagine a team of guides that will stand with you as you support your child's recovery. Your guides might be a parent who has a child six months ahead of yours in their recovery from Topical Steroid Withdrawal Syndrome. Or six years. Ask for help with groceries. Ask for help with anything and everything. You will not look back and wish you didn't ask. You will look back at how you grew a safe, caring circle of support for your child and you during TSWS. Read more. When a medical provider is unable to recognize that the treatment for a child's eczema has worsened their condition resulting in TSWS and threatens to report a parent to Child Protective Services if they do not comply (despite parent's documentation that TCS is not treating and is now worsening their child's health), trust is broken…Trust your instincts to continue to support your child's mental and physical health by identifying qualified medical providers to develop a patient centered care plan. Trust that global awareness is growing about TSWS and you will reach a place of health and healing for your child by continuing to ask questions, to seek appropriate care, to learn about TSWS and to tell your story. Change is coming. Read more. Be an Advocate: TSW makes advocates out of all of us since the condition is not yet well known. Here are some ways you can help: Complete an Adverse Drug Reaction Report with the FDA: You can report adverse drug reactions or side effects to the FDA from anywhere in the world. But if outside the US, please also report to your country's equivalent to the FDA (Food and Drug Administration). The more places you report, the more your experience will be seen and heard. Report adverse effects here. Donate:  ITSAN runs on donations from you.  Please help support the efforts of our community to drive awareness.  Consider a Matching Donation from your workplace, or a monthly donation amount.  If we had more funding we could do more. Share Your Voice: If ITSAN has helped you, please consider writing a review at Great Nonprofits so we stay Top Rated for 2021. Share Your Story: Thank you to every TSW warrior and caregiver for the courage to share your story, to raise awareness on the difference between Topical Steroid Withdrawal Syndrome and eczema, to promote TSWS prevention, early detection, accurate diagnosis & proper treatment. Every story has the power to bring change.  Share your story with us:  info@itsan.org Thank you to our Sponsors: ITSAN now has 2 amazing sponsors! The generous giving of our sponsors allows us to do the important work of our mission – raising awareness of TSW and supporting all affected individuals. Read on » Fall 2020 Newsletter Fall News & TSW Information Hello ITSAN Community and #StayAtHome Experts!! Welcome to the ITSAN Fall Newsletter.   Our community has grown significantly over the last 12 months; we count over 7500 people currently. ITSAN's mission of the International Topical Steroid Awareness Network is to raise awareness of Topical Steroid Withdrawal Syndrome and support affected individuals.  ITSAN is the only 501(c)(3) non-profit charity serving the global TSW Syndrome community as a resource for the individual, the caregiver, and the healthcare provider. Notice anything new on the ITSAN website?  Kathryn Tullos, RN has been spearheading the effort to update research links, add a News section, and additional functionality into the site, which is getting around 11k visitors a month.  To learn a little more about the ITSAN board working behind the scenes for the TSWS community, please visit the About ITSAN tab on ITSAN.org. And if ITSAN has helped you, please consider writing a review at Great Nonprofits so we stay Top Rated for 2020. Thank you for completing our Q1 Survey!  ITSAN put out a survey in February to the community to better understand what you want and need from us.  We had around 100 people participate in this quick survey, and many of you want to hear more healing stories, more personal experience, and more medical information.  Check. Members in the News:  Kristi Chun and her family were featured in ABC's KITV4 station out of Honolulu, Hawaii last year in a piece called "From childcare to medical care:  Honolulu family faces painful reaction to topical cream" TSAN Working for Change – – Recall that last fall, ITSAN was one of five patient advocacy groups for the first Patient-Focused Drug Development meeting with the FDA about eczema treatments; many of those in the general TSW community came out in full support of the experience and burden of living with a condition for which current drug therapies have fallen short for.  The survey received over 1500 survey responses from 58 countries around the world.  The report from this meeting and the survey were recently published; the report is called More Than Skin Deep and the full report is available for your perusal.   Just want the quick recap? This is for you!  That report led to an alignment of missions with the AAN, the Allergy and Asthma Network, on a survey being constructed that will promote a safety meeting with the FDA, and also inform AAN's current Steroid Stewardship campaign.  The AAN warns against the overuse of OCS (oral corticosteroids; think Prednisone) so we have a lot in common.  Kelly Barta and Kathryn Tullos, RN are our champions on this cause.  Kathy is representing ITSAN in two related efforts: 1) Steroid Stewardship Patient workgroup. 2) Steroid Stewardship Healthcare Providers Workgroup. ITSAN was invited to speak at the Dermatology Nurses Association annual conference in March; thanks to a global pandemic, this meeting was postponed until August 2020 and will be virtual. Kathryn Tullos, RN is slated to speak on behalf of ITSAN.  Jodie Ohr was able to represent ITSAN and present on the TSW Syndrome experience to the North Carolina Dermatology Nurses Association in February, just before things got a bit crazy around the world.  The group was very engaged and had many questions about the condition and how to avoid it.  Her presentation is available for you to customize for your own advocacy efforts as well; contact johr@itsan.org if you think you want to present to your own local industry contacts or authorities. Caregiver Support Parent of a child who has experienced TSW and caregiver advocate, Jolene MacDonald created the following roadmap on strategies for families experiencing the stress of identifying and establishing appropriate care for their child during TSW. Supporting and Protecting Your Family and Your Right to Access Appropriate Medical Care For Your Child During Topical Steroid Withdrawal Syndrome ITSAN encourages anyone going through Topical Steroid Withdrawal Syndrome or caring for someone in TSW to work with a TSWS supportive doctor in order to access appropriate care.  ITSAN does not diagnose or recommend treatment or medication.  ITSAN maintains a list of TSWS (Topical Steroid Withdrawal Syndrome) supportive doctors recommended by members.  If you are looking for a place to start, check the list in the Files section of the Facebook group: ITSAN Topical Steroid Withdrawal Syndrome Support Group – Private Group Please note that ITSAN has not vetted these healthcare providers independently. These practitioners have been suggested as "supportive" by members of ITSAN support groups. This usually means supporting your wishes to use a 'no steroid' approach, and does not always mean they are familiar with TSWS (Topical Steroid Withdrawal Syndrome). You may want to confirm their perspective on TSWS before booking an appointment. As a caregiver advocate and parent to a child who is now six years TSW, before I was able to establish care with a TSWS supportive doctor, I created my own roadmap to protect my child and my choice not to pursue a treatment (topical steroid creams), that had worsened his condition.  I knew of other parents of children who had experienced extreme, iatrogenic reactions to topical steroid cream treatment and had shared their experiences with the risk and stressors involved in advocating for their child's care. The suggestions below are from my experience of what my family did while my son went through TSWS.  This roadmap highlights ways to be proactive in advocating for your child and family during Topical Steroid Withdrawal Syndrome. ITSAN does not diagnose or recommend treatment or medication. For our family being prepared as a parent caregiver during TSW meant: Bringing a family member to medical appointments as a note taker for medical accountability until we established care with a supportive and trusted pediatrician/provider. Accessing copies of all of my child's medical records. Correcting inaccuracies in his hospital records and former pediatrician's medical records. Keeping photo documentation of his TSWS journey, including when his symptoms were worsened by treatment. Labeling the treatment, class, dose and duration. Printing the drug information for every topical, oral and inhaled steroid he had previously been prescribed and highlighting every adverse reaction he had experienced and ADDING the ones not listed. Reporting adverse topical steroid cream and other drug reactions to the FDA (Food and Drug Administration).* https://www.accessdata.fda.gov/scripts/medwatch/index.cfm Establishing care with a pediatrician who included steroid allergy in my child's medical records. Reaching out to an attorney friend who contacted a colleague with previous experience working for Child Protective Services to discuss family and patient rights. Establishing care with a naturopathic doctor to coordinate lab work and guide us in ways to treat the underlying cause of his condition. Screening dermatologists by phone to determine if they had alternative treatment options besides topical steroid creams and calling more than once to confirm before seeing an out of state dermatologist. Continuing care with an osteopathic doctor for craniosacral therapy in addition to our primary care physician. Continuing care with a Licensed Clinical Professional Counselor for individual therapy. Documenting every provider my child had seen, including upcoming appointments. Printing resources on TSWS to have available to share and to keep in a binder with my child's medical information. Info at: ITSAN.org I hope that the suggestions above help give you ideas of ways to feel more prepared and proactive when you are caring for your child's intense health issues during TSWS.  There are supportive doctors who will listen and learn if they are not familiar with TSWS.  I was able to share my concerns with providers who understood my child's condition and their skill and support was healing for all of us.  Stay hopeful and take time to take care of you.  To Report Adverse Drug Reactions: File a MedWatch voluntary report with the United States FDA here. You can report adverse drug reactions or side effects to the FDA from anywhere in the world. But if outside the US, please also report to your country's equivalent to the FDA (Food and Drug Administration). The more places you report, the more your experience will be seen and heard: UK: https://yellowcard.mhra.gov.uk/the-yellow-card-scheme/ Australia: https://www.tga.gov.au/reporting-adverse-events Canada: https://www.canada.ca/…/adverse-reaction-reporting.html And if everyone reports their adverse effects to the manufacturer as well, our voices will be amplified and harder to ignore. For more information on reporting adverse drug reactions to topical steroid creams and/or other medications to the FDA, please see  our April 2020 step-by-step Webinar on how to report to the FDA with ITSAN President, Kathy Tullos, RN. It is the pinned post in the ITSAN support group on Facebook. It will be posted on our ITSAN YouTube channel soon as well. Be an Advocate: TSW makes advocates out of all of us since the condition is not yet well known. The most impactful thing you can do to advocate for change is to complete an Adverse Drug Reaction Report with the FDA, even if you're not from the United States. We need your recommendations!  Please email your TSWS supportive healthcare provider's full contact info (name, address, phone) and how they helped to:  Info@itsan.org The Creative Side From Our Community.  Jessica Myrup of Blaque Cloud Art has dealt with skin issues since she was 5 years old and sums up her experience in prose: Perseverance There is fire in my skin It is happening again. The flame licks nerves, Ignites whispers To claws that bite; Who split in spite; To douse the need Until I bleed. There is fire in my flesh. The wounds now raw and fresh. It burns, it churns, For peace, it yearns, Now weeping with the rest. Sometimes I feel I only heal To feed its appetite Though mourning's real, My nerves of steel Show me morning's light Read on » "More than Skin Deep" Voice of the Patient Report "More than Skin Deep" Voice of the Patient Report The International Topical Steroid Awareness Network, along with four other nonprofits, is excited to launch the "More than Skin Deep" Voice of the Patient report! This report includes the lived experience of eczema, drawn  from data and testimony shared at the 1st patient-focused drug development (PFDD) meeting for eczema. Check out this report and learn from hundreds patient and caregiver experts who shared their perspectives at the meeting, on the webcast, and via the survey. Host organizations, including our own Kelly Barta and Kathryn Tullos, and sponsor companies share how they'll use the learnings from the More Than Skin Deep initiative to better meet the community's needs. Download the report at bit.ly/eczema-report. Read on » Alert: Patient-Focused Drug Development Meeting – September 23, 2019 Alert: Patient-Focused Drug Development Meeting – September 23, 2019 ITSAN is so incredibly excited and proud to announce this very special event!  For the past 8 months, we have been working tirelessly together with four nonprofit organizations serving the eczema community to launch "More Than Skin Deep" – a series of opportunities for your perspective to inform and shape the understanding of eczema and the development of drugs and medical devices designed to treat this condition. A focal point of the initiative is a patient-focused drug development (PFDD) meeting to be held September 23, 2019 in the Washington, D.C. area. It will provide the eczema community an opportunity to speak directly to Food and Drug Administration (FDA) staff, representatives of pharmaceutical and medical device companies, and other key stakeholders. The PFDD series began in 2013 as a way for FDA and clinical trial sponsors to understand more fully the burdens of living with a particular medical condition, what patients most value in terms of treatment benefits, and what risks and side effects they are willing to tolerate. The "More Than Skin Deep" initiative is the first of its kind for eczema and we urge you to help make it as powerful as possible by contributing your perspective. A new website – www.MoreThanSkinDeep-Eczema.org – is dedicated to empowering people living with eczema and their caregivers and care partners. It provides 3 ways for you to get involved: Complete the "More Than Skin Deep" survey – Your input will shape meeting discussion and will be included in the report that follows the meeting. Signal your interest in attending the September 23 meeting in person – By registering and then completing a brief questionnaire, you'll help us ensure that participants reflect the full range of diverse experiences in the eczema community; travel support is available. RSVP to participate via live webcast on September 23 – You'll be part of the discussion via live polling and "chat" features. The collaboration among five organizations to develop this initiative is itself a landmark event for the community and for PFDD; it is among the largest coalitions of organizations to partner for one of these meetings. An example of how PFDD can benefit people living with eczema is to deepen understanding about all the ways in which eczema impacts people's lives – beyond the discomfort of having red, itchy skin that is so often the sole focus and especially how regular "eczema" can take a turn for the worse to develop into RSS by the current standard of care.   Please consider participating in this landmark effort by visiting the new website and taking one or more of the requested actions. Your voice and perspectives are essential for us to demonstrate that eczema and is "more than skin deep." Let's DO this!!! Kelly Barta, ITSAN President Read on » Special Announcement: New Documentary Film Special Announcement: New Documentary Film It is with great honor that we can share a full-length documentary on Topical Steroid Withdrawal created by one of our community veterans, Briana Banos. A passionate TSW warrior, Briana raised the funds for this documentary via crowdfunding herself and managed full creative control of the film in order to raise awareness of the potential devastating effects of steroid medications on a global population.  Please view the documentary and if you're so inclined, share, 'like,' and subscribe to her channel. Read on » 2018 Year End Report It's been a busy and productive year For ITSAN!  Here are some Highlights from 2018: January ITSAN works on a state level in Georgia to change Step Therapy protocols mandated by health insurance companies, which require patients to have to "try and fail" cheaper medications before allowing access to more expensive options such as the biologic, Dupixent.  As we know, our patients can not go back to steroid treatment and need  access to other medications that they and their practitioner believe are best. HB 519 passed unanimously in the house, but ran out of time to pass through the senate.  It is expected to pass through into legislation this coming session. February 2 ITSAN delegates, Dr. Raj Kooner and Andrew Boroweicki, represent ITSAN at the American Academy of Dermatology's Annual Conference and exhibit with the Coalition of Skin Diseases. Over 400 ITSAN members file a topical steroid adverse effect report to the FDA.  Follow up with the FDA leads to the next objective of creating a petition for our community to submit. March Jodie Ohr, ITSAN Secretary, develops TSW/RSS Activist Kit for members; including a TSW power point presentation, adverse effect reporting, and letters to treating physicians, and elected officials. April Kelly Barta becomes ITSAN President.  ITSAN acquires non-profit status in the state of GA allowing more access to future grant applications. May  ITSAN exhibits at the International Investigative Dermatology (IID) Conference with over 3,000 in attendance, connecting with industry leaders, scientists and doctors to tell our stories and garner interest into future research. June Kelly speaks on grassroots advocacy at the Eczema Expo put on by the National Eczema Association and makes key connections with many in the eczema community. ITSAN is accepted as a member of the International Alliance of Dermatology Patient Organizations (IADPO) July 2 ITSAN delegates, Jodie Ohr and Kelly Barta, attend the American Academy of Dermatology's Legislative conference and meet with 13 Congressmen and Staffers to tell the TSW story.  This conference includes a developmental day with the Coalition of Skin Diseases, helping us make our non-profit more effective. Kelly is invited into a meeting with DermaCare Access Network in DC to participate in efforts surrounding Step Therapy Amendment on a federal level. Meeting with consultant, Jean Pickford, to help develop a strategic plan for ITSAN. September Begin educational Webinar series for members Kelly shares the TSW story to nursing students at Georgia Sate University October Work with the National Eczema Association in developing a "Patient Bill of Rights" ITSAN becomes a member of Derma Care Access Network (DCAN) November First ITSAN conference in Atlanta! Kelly attends and speaks at Step Therapy Congressional Briefing in DC, also connecting with industry leaders who are interested in partnering with us regarding TSW research. What's in store for 2019?: One of our chief priorities is to conduct a prevalence study. In order for TSW to be widely accepted by the medical community, prevalence must be determined.  Because there are ethical issues involved, it would be very difficult to run a study like this just asking people to stop using their medications. Our hope is that we will be able to partner with one of the pharmaceutical companies who are developing new biologics for the AD community. If we can document the outcome of the placebo arm of these studies, what happens when these individuals stop using TS, we should be able to discover prevalence. Kelly is planning on meeting with several individuals who are involved in Research and Development of a high profile pharmaceutical company in March.  After determining prevalence we would apply for a diagnostic code with the World Health Organization. Another goal is to start a Patient Registry in Redcap that would be available to scientists for future research. We are so excited to begin that process by currently working with a group of dermatologists in Denmark and the University of Copenhagen who are developing a TSW survey for our members that will be inputted into Redcap. We believe that there could be a genetic biomarker that would identify those who are unable to properly metabolize steroids and should pursue different forms of treatment for their chronic skin condition. This is another research objective we are looking into and will be contacting several research facilities in hopes they will partner with us in the near future. Armed with over 50 patient stories from around the world, ITSAN plans to exhibit at as many medical conferences as we are able to in the coming year. These stories showcase that TSW crosses all lines; that this is happening to individuals of every race, every age, both male and female. It is so important to connect one on one with medical professionals; to tell our stories and let them take a look at the evidence in numbers. Also, pictures speak a thousand words!  These conferences include: American Academy of Dermatology Annual Meeting   – March 1-5 (19,000 in attendance) Society of Investigative Dermatology Annual Meeting  – May 8-11 Eczema Expo  – July 19-22 American Academy of Dermatology Legislative Conference – September 8-10 Integrative Dermatology Symposium – Oct.3-5 Pediatric Dermatology Research Alliance  Annual Meeting  – October We have had nearly 400 of our members report an adverse effect to the FDA and have been instructed by them, as a next step, to develop a petition. We are hoping that when this is completed TS will be reviewed and that the FDA will make changes in labeling that would include TSW as an adverse effect and put clear limits on use and monitoring requirements. As far as ongoing support measures for our members are concerned, we want to focus more on education, providing monthly webinars and biannual conferences. We are also in the process of developing a forum on our website, along with additional resources, that will allow members to access information on topics and questions we all deal with. All of these initiatives come with their own price tags, which doesn't include operational expenses for our organization.  Because TSW is still considered an emerging diagnosis, there are not many physicians who have been willing to stick their necks out and come on board, openly supporting us. This provides an extra challenge in raising the money we need to accomplish our goals, since applying for many grants require the backing of the medical community. We currently rely solely on our members to support us financially. Following is an estimated breakdown of these expenses for the coming year.  I have added in compensation for 2 staff members, as the work load involved in accomplishing our mission is impossible on volunteer hours alone.  We have survived on a couple of volunteers carrying ITSAN up to this point, but it is no longer realistic or possible. Please consider giving significantly before December 31st.  Having sufficient funds will enable us get over that challenging hump, to where we will finally have made the connections needed and have the research backing to begin applying for large grants.  These grants will assist us tremendously in bringing global awareness to TSW and promoting research into mechanisms and more viable treatments, making TSW a thing of the past. They will also allow us to offer much more support to those suffering and their families. Website forum, patient registry, and site upgrades: $8.000 Representation at 2019 Conferences:  $8,500 Webinar Series: $2,700 Operational costs for ITSAN, including staff compensation for 2 people: $68,000 Let us know if you would like to donate to a specific event or project and we will designate your money there.  If you would like to see our financial reports from previous years, please send that inquiry to our treasurer, Susan Ryza @ Sryza@itsan.org. Kelly Barta testifying during a Insurance Subcommittee Hearing on Step Therapy at the Georgia State Capitol. Briana Banos and Kelly Barta at the IID Conference Some of the amazing TSW Warriors at our ITSAN conference Thank you for your serious consideration in partnering with us before the year's end! Donate Now Read on » Copyright © 2021 ITSAN, All rights reserved. You are receiving this e-mail because you are a member of the official ITSAN website and opted in to receiving information from us. We are mindful of the amount of e-mail our members receive and only send periodic notifications and newsletters. Our mailing address is: ITSAN P.O. Box 303 Dacula, GA 30019 Add us to your address book Want to change how you receive these emails? You can update your preferences or unsubscribe from this list.